Beyond HIPAA Reimagining How Privacy Laws Apply to Health Data to Maximize Equity in the Digital Age EPIC Electronic Privacy Information Center
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PAST EVENT
pp21 Jan 200 PM EDTppOn Wednesday January 21 the Electronic Privacy Information Center EPIC hosted Beyond HIPAA Reimagining How Privacy Laws Apply to Health Data to Maximize Equity in the Digital Age ppEPIC Senior Counsel Sara Geoghegan moderated a virtual discussion panel with Amir Sadeghi a Policy and Advocacy Manager at the Center for HIV Law Policy Amy OHara a Research Professor at the Massive Data Institute at Georgetown University and Kierra B Jones a Senior Health Policy Analyst at the Center for American ProgressppUnregulated technology mass surveillance and weak or nonexistent privacy laws have created a health privacy crisis in which our health data is collected and used to profile us manipulate our behavior and charge us more for care Commercial surveillance fuels practices that push people away from care including criminalization constant online tracking unregulated AI and data breach These invasive data practices erode trust in groups that are overpoliced and discourage people from seeking care Delayed or deferred care worsens health outcomes because health conditions often become more severe when left untreated Privacy should be baked into health systems and shouldnt be a luxury ppOur panelists dove into these topics and discussed how our current legal and technological realities threaten our health privacy and undermine health equity As new technologies allow for improvements in healthcare provisions and medical research individuals can be pushed away from care due to a lack of trust fear stigmatization criminalization and barriers to access Our panelists discussed the role that data privacy plays in health equity and propose solutions to build a healthier safer and more privacy protective futureppTo dive deeper read Beyond HIPAA Reimagining How Privacy Laws Apply to Health Data to Maximize Equity in the Digital Age the full report herepp1519 New Hampshire Avenue NWppWashington DC 20036ppPhone number 2024831140pp
Copyright
1994 2026 EPIC all rights reservedp
PAST EVENT
pp21 Jan 200 PM EDTppOn Wednesday January 21 the Electronic Privacy Information Center EPIC hosted Beyond HIPAA Reimagining How Privacy Laws Apply to Health Data to Maximize Equity in the Digital Age ppEPIC Senior Counsel Sara Geoghegan moderated a virtual discussion panel with Amir Sadeghi a Policy and Advocacy Manager at the Center for HIV Law Policy Amy OHara a Research Professor at the Massive Data Institute at Georgetown University and Kierra B Jones a Senior Health Policy Analyst at the Center for American ProgressppUnregulated technology mass surveillance and weak or nonexistent privacy laws have created a health privacy crisis in which our health data is collected and used to profile us manipulate our behavior and charge us more for care Commercial surveillance fuels practices that push people away from care including criminalization constant online tracking unregulated AI and data breach These invasive data practices erode trust in groups that are overpoliced and discourage people from seeking care Delayed or deferred care worsens health outcomes because health conditions often become more severe when left untreated Privacy should be baked into health systems and shouldnt be a luxury ppOur panelists dove into these topics and discussed how our current legal and technological realities threaten our health privacy and undermine health equity As new technologies allow for improvements in healthcare provisions and medical research individuals can be pushed away from care due to a lack of trust fear stigmatization criminalization and barriers to access Our panelists discussed the role that data privacy plays in health equity and propose solutions to build a healthier safer and more privacy protective futureppTo dive deeper read Beyond HIPAA Reimagining How Privacy Laws Apply to Health Data to Maximize Equity in the Digital Age the full report herepp1519 New Hampshire Avenue NWppWashington DC 20036ppPhone number 2024831140pp
Copyright
1994 2026 EPIC all rights reservedp
